Who is your tribe? What group can you identify and connect with in a unique way? We all want to belong. We seek people we have things in common with. But sometimes, finding your tribe pushes you outside of your comfort zone. It was a long drive from my house to the meeting location for […]
Preparing a TEDx talk is an intense, grueling, and emotional process. What is a TEDx talk? TED is a national organization whose letters stands for Technology, Entertainment, Design, and their focus is on presenting “ideas worth spreading.” The “x” indicates that the event is independently organized and sponsored. To view my talk, titled Beauty Is […]
Traveling with a facial difference isn’t that much different from traveling without one. I enjoy traveling. In fact, my husband Ian and I recently returned from an epic trip to South Africa. Good thing I am not afraid to show this face to the world. However, I understand that some people with physical differences are […]
Have you ever had to do something every once in awhile to remind yourself why you don’t do it? I did this periodically with cotton candy. I loved it’s sweet sticky mouth-staining goodness when I was a kid, but when I got older I appreciated it much less. In fact, it became rather abhorrent. But […]
I didn’t want to pay for Rosti. I knew I was taking a risk buying him because I didn’t know whether or not there was something seriously wrong with him. But I did pay for him. $500. I decided he was worth taking a risk. Besides, he needed me, or at least he needed someone […]
When it comes to facial reconstructive surgery, it’s not like I can just say “please put it all back” if I am unhappy with the result. When the producer of Body Bizarre, the show that shot a segment about me to air later this year, asked me if I’d be willing to do a consultation […]
Me and the Mandolin- Circumstances keep me away, but other circumstances keep drawing me back. Have you had an activity or hobby that you do for awhile, then other priorities take over, but then something happens and you get sucked back in? That seems to be my relationship with the mandolin. I took up mandolin […]
I acknowledge that doing a show titled Body Bizarre involves some risk. When I was contacted via email by a producer from TLC/Discovery’s show Body Bizarre about featuring me in a segment, I took a day to think about it, even though I pretty much knew from the outset that my answer would be “yes.” […]
I didn’t realize how important a sense of belonging was to me until it manifested as a theme in my memoir. I wrote my memoir Facing Up to It backwards. This doesn’t mean I started at the end and wrote until I got to the beginning. What it means is that I started by writing […]
What’s wrong with being an inspiration? Recently, I attended a summit with 9 fellow women authors, most of whom have dealt with adversity of their own. During a lunch time conversation, a group of them turned to me and one of them asked: “How do you respond when someone says to you “You’re such an […]
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